Participant Directory--Please do not share (updated on 5/11/26)
RDLA Glossary of Policy and Legislative Terms
Video: US Constitution and Three Branches of Government
Video: Structures, powers, and functions of Congress
RDLA Tip Sheet: Advocacy and Congressional Appropriations
RDLA Policy Primer: Insurance Regulations and Advocacy Strategies
RDLA Policy Primer: Understanding Medicaid Coverage
NIH Organizational Chart
FDA Organizational Chart
Rare Advocacy Learning Agenda (Updated on 4/24/26)
Orientation Information
Final Project Presentation Topic Ideas
Example of Rare Advocacy Learning Final Project Presentation by Abbey Hauser
Video of Example of Final Project Presentation
Slide deck for Orientation
Recording of the Orientation
Click here to join: Rare Advocacy Learning Virtual Orientation at 3:30 pm ET on April 16
Agenda for Week 1
Slide deck for Week 1
Recording for Week 1 Session
Supplementary Material: PDUFA Policy Primer
Supplementary Material: Guide to Patient Involvement in Rare Disease Therapy Development
Supplementary Material: NCATS Toolkit
Click here to join: State and Federal Government 101 at 3:30 pm ET on April 20
Agenda for Week 2
Recording for Week 2
Slide deck for Week 2
Supplementary Material: OBBBA Medicaid Policy Timeline
Supplementary Material: Medicaid HCBS Support at Home, Life in Community
Click here to join: Post HR 1 World: Medicaid and Payer Engagement at 3:30 pm ET on April 27
