Rare Advocacy Learning Seminars

    1. Links to Pre-Learning Resources

    2. Video: Federal Agencies: Impact on Rare Diseases

    3. Video: Current Healthcare Policy Landscape

    1. Recording: Rare Advocacy Learning Orientation

    2. Rare Advocacy Learning Orientation powerpoint slides

    3. Rare Advocacy Learning Orientation Information

    1. State Government 101 Recording

    2. Closed Captioning: State Government 101 Recording

    3. State Government 101 powerpoint slides

    4. Agenda: Week 1: State Government 101

    1. State Rare Disease Policy Issues Session Recording PART 1

    2. State Rare Disease Policy Issues Session Recording PART 2

    3. Quiz: State Rare Disease Policy Issues

    4. Closed Captioning: State Rare Disease Policy Issues Recording

    5. State Rare Disease Policy Issues Powerpoint Slides

    6. Agenda: Week 2: State Rare Disease Policy Issues

    1. Engaging with Key State Stakeholders Session Recording

    2. Quiz: Engaging with Key State Stakeholders

    3. Closed Captioning: Engaging with Key State Stakeholders Session Recording

    4. Engaging with Key State Stakeholders Powerpoint Slides

    5. Agenda: Week 3: Engaging with Key State Stakeholders

    1. Engaging with Advocates and Organizations in Your Community Recording

    2. Engaging with Advocates and Organizations in Your Community Powerpoint Slides

    3. Quiz: Engaging with Advocates and Organizations in Your Community

    4. Agenda: Week 4: Engaging with Advocates and Organizations in Your Community
  • Free
  • 30 lessons
  • 9.5 hours of video content

Take your advocacy journey to the next level.